Author Archive

Carer tips

Written by steve baker. Posted in General, Tips

A collection of real tips from real carers, on healthcare, personal hygiene, communication, behaviour and routine. These tips were provided by Netbuddy, a site for swapping practical tips and information on all aspects of supporting people with learning difficulties.

 

Carer tips

Go to NHS Choices homepage

BaKare Klearside Bed featured on Channel 4 with Sarah Beeny

Written by steve baker. Posted in General

A family based in West Sussex appeared on “Double Your House For Half The Money” hosted by Sarah Beeny. The Channel 4 show which aired September 17th, 2013 followed a family as they are undergoing major home renovations to accommodate the growing needs of their 7 year old daughter Iona-May who has quadriplegic cerebral palsy.

The BaKare Klearside was used in the bedroom and featured on the show.

References:

 

BaKare Beds filmed at Naidex 2013

Written by steve baker. Posted in Events

The Blackwood Foundation is a subsidiary of Blackwood the Housing and Care provider; it is an Edinburgh based charity that helps disabled people of all ages to live more independently and improve their quality of life. The Blackwood Foundation were at Naidex promoting their new online community, bespoken, that is designed to help disabled people share knowledge and to showcase the latest and best innovations in independent living. Their community want to be involved in the design of new products and its members regularly review new and innovative products as well as help test and improve products. It is an expanding global community with members in over 100 countries.

The Blackwood Foundation arranged a meeting with BaKare Beds during the Naidex and video’d that meeting so that all of their members could visualise our products.

Beneath the video you can find all contact details including the website and the link for their  social network.

Links for the Blackwood Foundation

 

Muscular Dystrophy Campaign Information Day, 15th June

Written by steve baker. Posted in Events

Information Day: Becker muscular dystrophy

Join the Muscular Dystrophy Campaign on Saturday 15 June from 10am to 4pm in Daventry, Northamptonshire for an Information Day for families living with Becker muscular dystrophy .

The event, organised by the Muscular Dystrophy Campaign, will be led by Dr David Hilton-Jones, Consultant Neurologist, and will provide an opportunity to hear the latest updates in research, diagnosis and management of the condition from expert clinicians and researchers.

Families and individuals will also hear from expert health professionals about activity and exercise and attend a workshop lead by a physiotherapist.; attend workshops on access to education, welfare support and sexuality and relationships; take part in a one-to-one advocacy and welfare support surgery, and meet other people affected by Becker muscular dystrophy.

The day will be held at Daventry Court Hotel, Sedgemoor Way, Daventry, Northamptonshire NN11 0SG, just off junction 18 of the M1 and close to the M40.

Book your place

To book your place, please complete the registration form and return to: Muscular Dystrophy Campaign, Support Services, FREEPOST RRLK-LCZC-YLKH, 61 Southwark Street, London SE1 0HL.

Crèche facilities will be available during the day. Should you require overnight accommodation on Friday 14 June please book directly with the hotel by calling 01327 307000 and quoting the Muscular Dystrophy Campaign.

About The Muscular Dystrophy Campaign

Muscular dystrophy and related neuromuscular conditions are regarded as rare and, in many cases, even ultra-rare conditions. There are currently no efficient treatments or cures available for most of these conditions. Research, however, advances fast and a number of clinical trials to test the clinical benefit of promising technology are under way.

Over more than 50 years, the charity has contributed to crucial scientific breakthroughs in the field of muscular dystrophy and related neuromuscular conditions such as: laying the foundations for the promising technology of ‘exon skipping’ which is currently being tested in clinical trials for boys with Duchenne muscular dystrophy, and funding work that has led to a scientific breakthrough in finding a treatment for mitochondrial myopathy, which is now close to clinical trial.

Scientists and clinicians are beginning to express cautious optimism that treatments might become a reality in the near future, but to do this we need to continue to fund research. The Muscular Dystrophy Campaignaim to find treatments and ultimately cures for muscular dystrophy and related neuromuscular conditions and improve the lives of everyone affected by them and we need your help to do this.

The Muscular Dystrophy Campaign’s work has five main focuses:

The Muscular Dystrophy Campaign rely almost entirely on voluntary donations and legacies to fund their work. Dedicated volunteers,companiestrusts and foundations help to raise money to fund vital work.

More Information

For more information please contact infoday@muscular-dystrophy.org or call Maureen on 020 7803 4800.

Alternatively, please visit The Muscular Dystrophy’s Campaign’s website.

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